Our First Meeting Was A Tremendous Success

Thank-you to everyone who participated in the first meeting of the International Sickle Cell Lung Collaborative and to all of the supporters who wished they were there.  We had almost 20 people from all over the nation and Jamaica present.  The discussions were easy and the enthusiasm palpable.  


I'll post more about our discussions and our to do list by next week.  Also tune in for additional pages for member contact information and upcoming events.

Sickle Cell Lung Collaborative Meeting

Thank you to everyone for showing interest in a Sickle Cell Lung Collaborative.  This page will be a location for up-to-date information for the ATS 2012 meeting.  In the future we will have a website that will allow for dynamic interactions, organization of relevant information, posting of upcoming events and more.  I'm hoping that our group will build upon all of our individual strengths to create a better world for our patients with sickle cell anemia. 

ATS Monday May 21, 2012, 12:00-1:30pm 

Marriott Marquis Hotel Pacific Suite I, 4th Floor

Agenda:

1. Introductions
2. Identify priorities for the collaborative including focus (clinical vs research vs advocacy), mode of communication
3. Identify individuals that would like to help organize
4. Thoughts about how to fund a collaborative like this
5. How to recruit more people including pediatric and adult practioners, allied health professionals

If You Can't Make the Start Up Meeting but are still Going To ATS

There will be other oppurtunities to meet if you are unable to make the Monday meeting.

1.  5/20/12 Assembly of Pediatrics Membership Meeting

Sun May 20th 6:30pm-8:30pm

Assembly on Pediatrics Membership Meeting

San Francisco Marriott Marquis

Yerba Buena Ballroom 7 - Lower B2 Level

2.  Monday 5/21/12 Assembly of Pediatrics Dinner 7:00-10:00pm, Marriott Marquis Hotel Sequoia Room, 2nd Floor

3.  Wednesday 5/23/12 Scientific Symposium:  Controversies in the Diagnosis and Treatment of Sickle Lung Disease, 8:45-10:45am,  Room 3000-3002-3004, Moscone Center, West Building


OBJECTIVES

At the conclusion of this session, the participant will be able to understand the discrepancies between various studies on lung function in sickle cell, learn and understand the role of asthma in sickle cell disease and become familiar with the pros and cons of oxygen therapy and systemic steroids in sickle cell.

The cardiopulmonary complications of Sickle Cell Disease (SCD) are the leading cause of mortality and account for a significant portion of the morbidity among the affected patients. Yet, there are still significant controversies regarding the exact effects of the disease on the lungs, about the need and type of diagnostic work-up and about the efficacy and safety of several of the currently used therapeutic interventions. The symposium reviews and discusses the most important of these controversies.

If You Can't Make ATS 2012

If you are unable to make the meeting I will provide an update after returning from ATS.

You may use the comment section below for questions and thoughts.  At this time the site is open to the public so please be aware of that.